FAQ
What is Thalassemia?
Thalassemia is an inherited blood disorder. A genetic defect results in under-production of normal globin needed for Red Blood Cells (RBCs). This in turn causes the anemia, which is the characteristic symptom of Thalassemias.
There are many different forms of Thalassemia (e.g. Alpha, and Beta), each with varying degrees of severity referred to sometimes - for simplicity - as Major, Intermedia, or Minor.
See the below “Links” section for more. The Wikipedia entry on Thalassemia is an important read for all.
How can I help?
1-Learn and educate patients, care-givers, and your community about Thalassemia.
2-Donate blood every three months if possible. Else, encourage and help others to donate.
3-It is especially important to subscribe to Pat's blog, to keep abreast of his company's latest progress on the next-generation donor-less cure for Thalassemia. Your support for his efforts is much needed and appreciated.
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Monthly Archives: September 2010
Iron chelation: good and bad news
Since Exjade, iron chelation has become a more bearable and fruitful exercise. It is definitely where technology has exponentially increased “Quality of Life” for Thalassemia patients. Today, I have an important update. Let’s start with the bad news: Exjade has … Continue reading
Posted in Chelation
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